Healthwatch – Consumer Organisation for health and Social Care
Family Fund - Grants for disabled children for a wide range of items, such as washing machines, sensory toys, family breaks, bedding, tablets, furniture, outdoor play equipment, clothing and computers.
There are Discount Card Schemes you can register for. It is not just about the discount, it is also about meeting other members of the scheme who understand the issues and can provide information, advice and support.
Organisations including the Citizens Advice Bureau can advise you on your and your child's statutory entitlements to support including Carer's Allowance. There is also a system of Respite Care that varies between local authorities in what is available and how to access it. The Local Offer should give details.
Depending on a child's age and how their disability affects them there are benefits including PIP.
With this benefit it is best but not essential to wait until a child has a written diagnosis and to get help filling out the form - Citizens Advice Bureau or local Autism Charities may help. Do not be discouraged if you are refused and appeal. This is the guide DWP staff use to make their decisions.
Most charities provide a forum so families can provide emotional support and advice to each other including how to access support at a local level . e.g. PDA Society National Autistic Society Network of Local Branches Contact a Family Network of Local Branches Local knowledge is essential as there is considerable unexplained variation between local authorities and regions in the type and amount of support available.
Also re PIP - There are three excellent websites: Citizens Advice, AdviceNow ( website also has a Personal Independence Payment tool which helps users assess whether they should appeal a decision, and provides a tailored Mandatory Reconsideration Request Letter which sets out their case ) and Pipinfo.